Photos before SDR

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SDR day 7

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 We received insurance approval and were transferred by ambulance to Spaulding for inpatient rehab. It was a great relief to get out of the hospital and into another setting! I was relieved that we were transferred in ambulance so that she didn't have to sit up for a long time through Boston traffic at rush hour. We've been in Spaulding before so it has an air of familiarity which is refreshing. 
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SDR at 2 weeks

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 We added lidocaine patch in two strips on her back parallel to her nicely healing wound. She's been cleared to be immersed so we can do aqua therapy if a slot opens up. Her sleep has been great the last two nights with tweaking of meds. I've got access to the stander here at rehab so she's standing daily outside of her PT session. But the big news today is that we got to try the Locomat! Locomat is an automated treadmill with robot-assisted lower extremity controls. In other words, she gets strapped in tightly with very carefully calibrated measurements and settings and the robotic arms move her legs in a normal gait pattern while the treadmill runs. It can be set with different amounts of assistance. Today, on her first try ever she did 20 minutes and the machine was only providing 65% of the effort! It was amazing to see my 17 year old daughter walking with a normal gait! I'm excited to see where we go with this! We also casted her right wrist to stretch it out. We...
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SDR complete!

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Gracie's surgery took over 6 hours yesterday, making for a very late night! Her neurosurgeon said that it went well but that her nerve signals are very confused. The brain damage that caused the cerebral palsy when she was a baby has resulted in all kinds of mixed up signals going to her legs, which explains so much of her movement challenges. Needless to say, it took quite meticulous and patient work for the surgeon to trace the nerves and figure out which ones had the most dysfunctional signals to the correct muscle group. Her surgeon is not sure how much capability she has for building significant muscle strength with such dysfunctional nerves.  She's very comfortable, resting in the ICU with an epidural for pain control. She has woken up and "chatted" happily but still groggy a few times. She has moved her legs a bit (which I'm happy to see) and her legs are soft with no clonus!
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