Photos before SDR

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SDR at 2 weeks

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 We added lidocaine patch in two strips on her back parallel to her nicely healing wound. She's been cleared to be immersed so we can do aqua therapy if a slot opens up. Her sleep has been great the last two nights with tweaking of meds. I've got access to the stander here at rehab so she's standing daily outside of her PT session. But the big news today is that we got to try the Locomat! Locomat is an automated treadmill with robot-assisted lower extremity controls. In other words, she gets strapped in tightly with very carefully calibrated measurements and settings and the robotic arms move her legs in a normal gait pattern while the treadmill runs. It can be set with different amounts of assistance. Today, on her first try ever she did 20 minutes and the machine was only providing 65% of the effort! It was amazing to see my 17 year old daughter walking with a normal gait! I'm excited to see where we go with this! We also casted her right wrist to stretch it out. We...
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A bit about Gracie...

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   Family photo 2019  Our daughter, Grace, was entrusted to us by God when she was about to turn 3 years old. Our journey with cerebral palsy, epilepsy, global developmental delays, feeding and swallowing issues, initial severe malnutrition, limited fine motor and gross motor, multiple surgeries, exploring alternative communication, and so much more has been an adventure, to say the least!  Baby Gracie   T his princess, now a teenager, is the first born of our 6 children and has paved the way for her rambunctious siblings. We have been blessed by many different inputs into her life. She has attended American public schools, private therapies, Ugandan schools, and homeschool.  She was the very eager guinea pig in the start of a one-of-the-kind integrated Ugandan school in the north and an enthusiastic participant in a well established self-contained special needs classroom in central Uganda.   All along the way, and around the world, we have h...
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SDR day 11

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 Daily Gracie is gaining strength. She wants to pull to sit. She's recovering balance in sitting and she has started sit to standing. She holds a stand for about 3-8 seconds now and is actively participating in stand pivot transfers. She is so excited for therapies. She receives 3 hours a day of therapies: speech, occupational therapy, and physical therapy. She's been a bit insecure and wants a parent with her constantly. Not sleeping great. But her pain is well controlled for the most part on valium (for muscle spasms), Tylenol, and Motrin.  The kids got to visit one by one! More and more comfortable sitting in her chair for longer stretches. A bike ride! Still passive leg movements, no attempts to really push much through her legs, but she enjoys it and doesn't resist it. 
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