SDR day 2

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 Busy day for our brave patient! We are loving the epidural for pain control. She's been very comfortable overall. With physical therapy, occupational therapy, and a few extra helpers, we got our girl prone (tummy time) with a little wedge to help keep her right arm from getting trapped due to the arm contractures. She giggled and "chatted" for quite a while during her 2 hour tummy time until she dozed off from the exertion of position changing. 

Her right arm, which is incredibly tight and has contractures, is definitely much looser today. It's an effect we were hoping for, secondary to the decreased tone in her legs. I'm not getting my hopes up after just one day, but I'm really hoping that decreasing the tone in her legs will help her right arm enough to avoid surgery. 

She has minimal movement in her legs which we assume will pick up as the epidural is weaned and she gets moving more. 

Her bed rest ends at 48 hours after surgery which would be around 10pm tonight. So tomorrow, we will start a protocol of getting her more upright and eventually out of bed. It's been a long couple of days keeping girlie occupied on her back and side! 

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