SDR day 4

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 Today is Saturday and much less busy in general in the hospital. Gracie has done great with the epidural out. Valium and gabapentin in addition to acetaminophen and ibuprofen are very well managing her pain. She has been tired today - perhaps she overdid it yesterday? PT helped get her out of bed into her wheelchair which she was excited about for a few minutes and then she was done. I later got her out of bed to the bedside commode for a few minutes. She's definitely not loving trying to stand and she has very little muscle effort going on in her legs. PT felt that she was contributing some effort but I'm not as sure. We knew she would have very little muscle under that tone but it's still a bit scary. We're praying that she can build these muscles over the next couple months and be a strong stander and walker in the future. She looks great sitting and her contracted right arm is looking fabulous and relaxed! 

She had an EEG done for 24 hours but she's so medicated with extra anti-epileptic medications for the muscle spasms and post surgical pain that we didn't capture any events that we were trying to capture. Oh well! It was worth a try and the EEG is off so her scalp is free and she is almost wire and tube free. 



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